Supporting people with migraine disease in Aotearoa New Zealand
Migraine Foundation Aotearoa New Zealand is the only registered migraine charity in New Zealand supporting people living with migraine
Migraine disease is a debilitating neurological condition. An estimated 642,000 people live with migraine in New Zealand. It’s more prevalent than diabetes, epilepsy and stroke combined, however migraine is misunderstood, under-diagnosed, under-treated and under-researched.
People with migraine living in Aotearoa have limited access to migraine support, specialised care and treatment and migraine-specific medications.
Migraine Foundation Aotearoa New Zealand provides a collective voice for people in New Zealand living with this invisible and disabling condition.
Upcoming meetups – Levin and Hamilton
In May, we held meetups in Auckland and Christchurch. In June we have meetups in Levin and Hamilton. We'd love for you to join us and chat with other people with migraine over a cup of tea or coffee. As always, drinks are on us.
When: Sunday 11 June 2023, 1pm
Where: The George Cafe, Speldhurst Country Estate, 70 Kimberley Road, Levin
When: Sunday 25 June 2023 2pm
Where: Coffee Culture, 70 Boundary Road, Hamilton
If you'd like to attend any of our meetups, please RSVP: email@example.com
Migraine in Aotearoa New Zealand Survey 2022
In 2022, we undertook the first online survey of people with migraine in Aotearoa New Zealand. We received 579 responses. Following removal of incomplete responses and those unlikely to have migraine, we had 530 responses for analysis.
The aim of the survey was to collect data on chronic migraine, medication overuse, types of medications used, non-medication treatments used, impact of migraine on work, access to and experience of health services, stigma and more.
Analysed by our researcher and epidemiologist, our key insight reports summarise the findings and offer much-needed research and insight into the lived experience of people with migraine in Aotearoa New Zealand
Help get Emgality funded in New Zealand
People with migraine in Aotearoa New Zealand deserve funded access to preventive medications that are safe and effective.
Help support our application to Pharmac for Emgality funding and raise awareness of the impact migraine has for individuals, whānau and society.
Your voice can make all the difference.
To minimise the health, economic and social burden of migraine disease in Aotearoa New Zealand.
To raise awareness of the impact of migraine disease and support people living with migraine in Aotearoa New Zealand.
Migraine and partners: A tale of two halvesMay 30th 2023Helena* recounts her experiences of ‘always’ and ‘never’ feeling judged or misunderstood by a spouse or partner because of migraine. ‘You always get sick when we visit my parents,’ myRead more
Gepants in New Zealand – an updateMay 22nd 2023Gepants are new oral migraine medications specifically developed for migraine. Gepants are a type of calcitonin gene-related peptide (CGRP) inhibitor, targeting the same peptide as the injectableRead more
Getting Emgality from your pharmacyMay 16th 2023You’ve decided to try Emgality (galcanezumab) for migraine prevention, you’ve got your prescription from an obliging doctor and now you have to get the prescription filled from a local pharmacy.Read more
Long-term use of migraine preventive medicationsMay 3rd 2023There’s very little about managing migraine that’s easy. This is especially true when our migraine attacks become so severe or frequent that they can’t be adequately controlled with acuteRead more
Anti-seizure medications and migraineApril 26th 2023Even though they were developed to treat seizure disorders, anti-seizure medicines are commonly used for migraine prevention. However, they only work about half of the time and they are not easy toRead more
GPs encouraged to become familiar with CGRP medications for migraineApril 11th 2023Calcitonin gene-related peptide (CGRP) medications. They’re without doubt this century’s revolution in migraine treatment. Including both injectable monoclonal antibodies (e.g. Emgality) and oralRead more
Celebrating our first birthdayApril 5th 2023Migraine Foundation Aotearoa New Zealand is one year old. And in compliance with the advice that people with migraine receive to moderate their lifestyles, instead of clinking champagne and chowingRead more
It's our first birthday, but you get the presentsApril 1st 2023This time one year ago, Migraine Foundation Aotearoa New Zealand was officially launched. To celebrate our first birthday, we’re giving away five copies of Dr Katy Munro’s book Managing YourRead more
Acute treatment for migraine attacksMarch 15th 2023Migraine is such a common disease, you’d expect all health professionals would know the best treatments and how to manage acute attacks. Unfortunately, this often isn’t the case. Migraine isRead more
Phases of a migraine attackFebruary 28th 2023We’ve become more familiar with the phrase ‘Migraine is more than just a headache’ but what does that mean, exactly? In one sense, it means that the type of headache experienced during aRead more
A positive response from PharmacFebruary 20th 2023On 20 January 2023, we sent Pharmac a letter, signed by all four of New Zealand’s headache specialists, raising concerns about its slow handling of the funding application for erenumab (Aimovig), tRead more
Migraine Foundation Aotearoa New Zealand is led by volunteers passionate about improving the migraine landscape in Aotearoa
Living with migraine disease can be challenging. Those of us with migraine know that it’s more than just a headache. Migraine is a whole body disease that affects everyone differently.
It can feel isolating, yet in New Zealand there are hundreds of thousands of people living with migraine.
Members of the Migraine Foundation Aotearoa New Zealand community share their stories about living with migraine and how there’s hope, even when some days it can feel like a struggle.
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