In other research, a third of people with migraine thought they would be better partners if they didn’t have migraine disease; and partners appeared to agree, with 29% feeling that arguments were more common because of headaches, and many reporting other negative effects on the relationship.¹
Feeling judged and misunderstood because of a disease can be a result of public or social stigma, where people with migraine are discredited, disbelieved and devalued because they are not behaving in line with social norms.² It’s socially expected that you go to work or school every day and perform to a certain standard, that you do your share of household chores and childcare, that you engage in social activities. It’s not socially acceptable that you randomly have to lie in a dark room, vomit in the bathroom and miss meetings, events and meals because of capricious migraine attacks.
This social stigma can lead to judgment from partners – but the feeling of judgment can also be driven by internalised or self-stigma, where the person with migraine themselves starts to believe they are less worthwhile and less valuable because of their disease.³
Experiencing stigma can actually worsen the disability from migraine² and it’s not hard to understand why. The stress of living with someone who judges and misunderstands your disease could make attacks more likely and more severe.
There are a few things we can do to reduce stigma in our relationships. We can ask our partners to educate themselves about migraine disease and tell them about what migraine is like for us – how it affects us and what they can do to help us. We need to have these conversations when we are well and not in the middle of an attack, especially when attacks impair our ability to think and talk. Just the shared understanding that migraine is a neurological condition, like epilepsy, and that we can’t control when attacks occur, can lessen some of the blame and judgment.
If your partner persists in being unsupportive and judgmental, you may want to reconsider whether this is a healthy relationship to be in or whether this is a sign of deeper issues that need to be worked on.
But let’s celebrate all those people who never made their partners with migraine feel judged or misunderstood. That shows what’s possible. That’s love in action. That gives us all hope for a future society where stigma against people with migraine no longer exists.