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Migraine in New Zealand survey

We’re undertaking a survey to understand the burden and impact of migraine in Aotearoa New Zealand

The survey includes questions about treatments you’ve tried, health services you’ve used and any issues or challenges living with migraine has on your professional and personal life.

We’re seeking participants who currently live in New Zealand who have been diagnosed with migraine or have symptoms that are consistent with migraine disease. These include:

  • pain on one side of the head
  • pain that lasts 4 hours to 3 days if not treated
  • throbbing or pulsing pain, usually moderate to severe and often worse with routine activity such as walking or climbing stairs
  • sensitivity to light, sound and/or smell
  • nausea and vomiting.

All responses are anonymous and remain confidential.

The survey will take approximately 20 minutes to complete. You can complete the survey by clicking the link below or hold your phone camera up to the QR code below to complete the survey on your phone or tablet.

The survey has been developed by Migraine Foundation Aotearoa New Zealand co-founder Dr Fiona Imlach, a researcher with a PhD in epidemiology.

The survey includes questions validated for migraine research, including the ID Migraine test and The Migraine Disability Assessment Test (MIDAS).


Why your participation is important

An estimated 642,000 people have migraine in Aotearoa New Zealand, and it causes a similar level of disability as major depressive disorder.

Migraine attacks that occur more frequently cause the highest amount of disability, and can affect a person’s ability to remain in employment as well as negatively impacting family and social relationships.

Despite this, there are no statistics from New Zealand on the prevalence of high frequency or chronic migraine (headache for 15 or more days a month). There are also no statistics on the proportion of people with migraine who are on appropriate treatment. Research from overseas suggests that the use of migraine-specific treatment for acute attacks and medication to prevent attacks is much less than expected, indicating a significant unmet need for treatment.

This survey is an initiative to support and encourage more migraine research in New Zealand, which is one of our key objectives.

We need this information to advocate for better support and treatments for people with migraine.

Without it, we can only guess at how many people stand to benefit from new migraine treatments in New Zealand that are not currently funded or available. We can also only guess at the burden and cost of migraine disease in New Zealand, how it impacts on productivity, quality of life and whānau.